amypoehlersmartgirls Repost from
@littlelobbyists
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38/100 - Samuel, age 9, Connecticut
To Sam, every day is the “best day ever.” He is kind and funny and always has a huge smile on his face. He loves to play with action figures, race cars, and spend time with his friends. Sam also has
#VanishingWhiteMatterDisease , a very rare untreatable and terminal brain disease which causes the white matter in Sam's brain to disappear over time. Sam enjoys school, where he gets the therapy he needs and sees the friends he loves. He uses a wheelchair to get around.
Sam’s mom Allyson says: "After four years on the waiting list, we got a
#Medicaid waiver. It means everything. Sam needs equipment – wheelchairs, activity chairs, bath chairs, standers, lifts – much of which is not covered by our primary insurance. Without Medicaid, or with cuts to Medicaid, our family will not be able to afford to properly care for him.”
Medicaid covers things most insurance does not – so kids like Sam can live at home, where they belong, with the families who love them.
#MedicaidMatters . To our families, it means everything.
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Do you have a child with complex medical needs and disabilities? Visit our website to share your story with us! http://www.littlelobbyists.org/storyform
[image description: boy holding onto his mom’s back as they walk in a wooded area. Both boy and mom are smiling broadly..]